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Niamh's Journey

A slideshow & video portrayal of Niamh's battle with irritractible seizures

Niamh had a number of different types of seizures throughout her life.
As was the nature of her condition, her seizures showed considerable variability over time.

We were incredibly fortunate to have a fantastic Telemetry EEG Team at Great Ormond Street Hospital who gave up a lot of their spare time to sit with us and go through Niamh's EEG's with video footage explaining to us exactly where in her brain each of Niamh's seizures were coming from, and showing us on the video exactly what they looked like.
This gave us a unique opportunity to identify exactly what type of seizure our daughter was experiencing each time. It also allowed us to differentiate between Niamh's seizures and her other abnormal movements (which looked very like seizures) but were not.

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A seizure is caused by a sudden burst of excess electrical activity in the brain, causing a temporary disruption in the normal message passing between brain cells. This disruption results in the brain’s messages becoming halted or mixed up.

There are many different presentations of seizures but simplifying things there are 2 main categories:

Partial (or Focal) - involving one part of the brain
Generalised - involving the whole brain

Niamh had both these main seizure types intermittently.